by JDCBS | Sep 28, 2023 | Patients and Parents, Research
We are very excited to share with you what’s new in the JDCBS. We are supporting some new research projects in JDM, as well as looking to build a core group of parents that can advice us on the research we do and how we can best support JDM. Click here to access...
by JDCBS | Aug 30, 2023 | Patients and Parents, Research
A new study, called MYOSCOPE, funded by NIHR RfBP, is due to start in September 2023, led by healthcare professionals at Alder Hey Children’s Hospital, Great Ormond Street Hospital, the University of Liverpool and the University of Manchester. In this study, we...
by JDCBS | Aug 18, 2023 | Patients and Parents, Research
The New JDCBS Database We are excited to announce that the Juvenile Dermatomyositis Cohort Biomarker Study and Repository (JDCBS) database has migrated to a new, future proof, database system called REDCap . This is a system for electronic data capture, widely used in...
by JDCBS | Jul 20, 2022 | Patients and Parents, Research
Click here to open our new JDCBS Newsletter 2022 – July Edition and find out what’s new! We are thrilled to share with you some exciting things we are working on!
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