NEWS

5th National JDM Family Day

by | Dec 10, 2024 | Patients and Parents

The 5th National JDM Family Day took place on Saturday, November 9, 2024, at Weston House, London, bringing together over 70 attendees, including 21 families, patients, parents, and healthcare professionals. Hosted in collaboration with Myositis UK and Versus Arthritis, the event featured an introductory session covering JDM, the JDCBS, research initiatives, and ongoing trials. Charities hosted speaking sessions and information stands. Attendees participated in interactive Q&A sessions and age-group-specific parallel activities, including psychology, physiotherapy, art therapy, science and research games, and quizzes. This engaging day fostered community connections while providing valuable insights and resources to support families affected by JDM. The event was very well received, with positive feedback from both children and adults, highlighting the value of the activities and the supportive atmosphere.

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Office Location

Juvenile Dermatomyositis Cohort Biomarker Study & Repository (JDCBS)
UCL Great Ormond Street
Institute of Child Health
6th Floor
30 Guilford Street
London, WC1N 1EH