info for researchers

If you’re a researcher or research group  conducting research into Juvenile Dermatomyositis or other IIM and would like to apply for access to the UK Biobank and/or Data, please download the forms below to see how you can get involved:

• Letter of Understanding for Applicant Researchers to the JDCBS
• Authorship and Publications Guidelines
• Declaration of Understanding
• JDCBS Project Application Template

Please note that your project will be subject to review and approval by the Juvenile Dermatomyositis Cohort & Biomarker Study Steering Committee who meet twice a year. The Steering Committee will start assessing application once submitted.

There is a small charge associated with accessing data and samples, which covers activities such as querying, cleaning, and sharing clinical data, as well as retrieving and sending samples. Please click here to access the JDCBS Charges Summary. If you are interested in applying but do not have available funding, please get in contact with the JDCBS Study Coordinator at info@jdrg.org.uk or d.cancemi@ucl.ac.uk.

If you have any questions, need to ask about feasibility of data or the samples available, or you would like to get in touch with the JDCBS Study Coordinator, please contact us via email at: info@jdrg.org.uk