Topic Specific Group
What is a TSG?
A TSG is a group of people coming from different backgrounds and professions that come together (either by teleconference or face-to-face meetings) to establish research priorities.
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What are the aims of TGSs?
- To set the research priorities in a particular clinical area, and help support and deliver successful research outcomes.Key aims and concepts behind TSGs are :
All children in the UK should be given the opportunity to take part in research studies from the time that their disease is recognised (diagnosed) onwards.
The TSG asks the question ‘what are the key research priorities that will change clinical practice and improve care in UK paediatric rheumatology (including juvenile dermatomyositis)?’
In this way, the TSG aims to improve the care and outcomes of patients with similar illnesses in the future.
Who is part of the JDM TSG?
- The JDM TSG includes parents of children with JDM, doctors caring for children with JDM as well as Specialist Nurses, Research Nurses, Physiotherapists, Scientists and trainees. Anyone can be part of a TSG and we warmly welcome parents and young people with experience of JDM as ‘consumers’.
How does JDM TSG link with the paediactric rheumatology CSG?
- Each TSG has a link person from the CSG scientific committee who ensures that ideas from the TSG are incorporated into the whole CSG portfolio. For JDM, Dr. Despina Eleftheriou from London acts as this link-person. Dr. Neil Martin from Glasgow sits on the JDRG Steering Committee as the TSG representative and works closely with Dr. Eleftheriou and other key researchers in JDM.
To find out more about the CSG click here.
Office Location
Juvenile Dermatomyositis Cohort Biomarker Study & Repository (JDCBS)
UCL Great Ormond Street
Institute of Child Health
6th Floor
30 Guilford Street
London, WC1N 1EH