News

New JDM Study: MYOSCOPE

A new study, called MYOSCOPE, funded by NIHR RfBP, is due to start in September 2023, led by healthcare professionals at Alder Hey Children's Hospital, Great Ormond Street Hospital, the University of Liverpool and the University of Manchester. In this study, we will...

The JDCBS GOSH DRE Database

The New JDCBS Database We are excited to announce that the Juvenile Dermatomyositis Cohort Biomarker Study and Repository (JDCBS) database has migrated to a new, future proof, database system called REDCap . This is a system for electronic data capture, widely used in...

JDCBS Newsletter 2021

Below our 2021 newsletter. Thanks to all the families and JDCBS Collaborators that supported us during this year. https://drive.google.com/file/d/109QgY7LXtnQh3ieGkI0x7gupRCgRuXi2/view?usp=sharing

Impact of COVID-19 on JDM and JSLE

Patients with JDM or JSLE, and parents of patients, are invited to participate in a survey exploring the impact of COVID-19 on JDM and JSLE. This study will use an exploratory survey to investigate the impact of the COVID 19 pandemic on the wellbeing of patients...

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Office Location

Juvenile Dermatomyositis Cohort Biomarker Study & Repository (JDCBS)
UCL Great Ormond Street
Institute of Child Health
6th Floor
30 Guilford Street
London, WC1N 1EH