JDM Information


Lady Doctor talking to a mother and daughter

In 2000 a group of leading UK Rheumatologists formed Juvenile Dermatomyositis Cohort Biomarker Study & Repository (JDCBS) and began recruiting patients to the JDM Cohort Biomarker Study and Repository​ (formally known as the National Registry and Repository).

The study and repository collects clinical data and specimens such as blood, saliva, serum, DNA, skin and muscle tissue. The specimens facilitate research  into JDM and other forms of myositis. The resource is open to project applications from clinicians, scientists and researchers. All applications are controlled by an independent steering committee to secure the quality of the research conducted. 

This website gives information about the JDM research group for patients, parents and health professionals.


Office Location

Juvenile Dermatomyositis Cohort Biomarker Study & Repository (JDCBS)
UCL Great Ormond Street
Institute of Child Health
6th Floor
30 Guildford Street
London, WC1N 1EH