News
Patients & Parents News
New JDM Study: MYOSCOPE
A new study, called MYOSCOPE, funded by NIHR RfBP, is due to start in September 2023, led by healthcare professionals at Alder Hey Children's Hospital, Great Ormond Street Hospital, the University of Liverpool and the University of Manchester. In this study, we will...
The JDCBS GOSH DRE Database
The New JDCBS Database We are excited to announce that the Juvenile Dermatomyositis Cohort Biomarker Study and Repository (JDCBS) database has migrated to a new, future proof, database system called REDCap . This is a system for electronic data capture, widely used in...
JDCBS Newsletter 2022 – July Edition
Click here to open our new JDCBS Newsletter 2022 - July Edition and find out what's new! We are thrilled to share with you some exciting things we are working on!
JDCBS Newsletter 2021
Below our 2021 newsletter. Thanks to all the families and JDCBS Collaborators that supported us during this year. https://drive.google.com/file/d/109QgY7LXtnQh3ieGkI0x7gupRCgRuXi2/view?usp=sharing
Great Ormond Street and the JDM team at UCL/GOSH have been elected as one of the Centres in the Cure JM Clinical Care Network
Details can be found here http://www.curejm.org/clinical-care-network/ccn-home.php
Impact of COVID-19 on JDM and JSLE
Patients with JDM or JSLE, and parents of patients, are invited to participate in a survey exploring the impact of COVID-19 on JDM and JSLE. This study will use an exploratory survey to investigate the impact of the COVID 19 pandemic on the wellbeing of patients...
Information on Coronavirus for Children and Young People
Latest information on guidance for patients and return to school, October 2020https://www.rcpch.ac.uk/resources/covid-19-shielding-guidance-children-young-people Useful...
The Inaugural North England JDM Family Day 2019
The inaugural North England Juvenile Dermatomyositis (JDM) Family day was held at the Chill Factor on Saturday 19th October 2019. Young people with JDM, their siblings, and families were invited to come along and meet other young people and families in the North of...
Update on fundraising for JDM research
Ongoing support for the UK-wide JDM research study is essential for us to understand this rare disease better, and ultimately achieve better outcomes for patients. The research and clinical teams involved in the Juvenile Dermatomyositis Cohort & Biomarker Study...
JDM Family Days
JDM Family Days are being organised around the UK. For more information contact info@jdrg.org.uk
Office Location
Juvenile Dermatomyositis Cohort Biomarker Study & Repository (JDCBS)
UCL Great Ormond Street
Institute of Child Health
6th Floor
30 Guilford Street
London, WC1N 1EH