Patients with JDM or JSLE, and parents of patients, are invited to participate in a survey exploring the impact of COVID-19 on JDM and JSLE.
This study will use an exploratory survey to investigate the impact of the COVID 19 pandemic on the wellbeing of patients suffering from JDM and JSLE. It will assess the resources and coping strategies used, and identify mechanisms for improving access to resources for patients affected with these diagnoses.
The survey is anonymous and participants can withdraw at any time by not submitting their survey. It has also received Health Research Authority (HRA) and Health and Care Research Wales (HCRW) approvals.
Link to survey: https://redcap.slms.ucl.ac.uk/surveys/?s=8RHL3TXCXD
